What We Do
- Facilitate patient meetings alongside cardiac clinicians educating patients and carers on specific cardiac conditions and treatment options
- Provide patient educational materials and resources
- Provide medically approved information to patients from medical experts
- Increase understanding amongst patients, that many of life-limiting symptoms can be significantly reduced or stopped with appropriate treatment
- Offer resources and education aimed at preventing hospitalisation
- Provide online forums/virtual community for cardiac patients, families, carers and friends
- Provide one on one support
- Provide assistance to adolescents with their transition into adult hospitals and services
- Coordinate national support and network groups
- Remove the sense of isolation and living a healthier, happier life
- Respond and seek to resolve cardiac related enquiries (for symptom or medical advice please contact your doctor and in the case of emergency please dial 000)
- Provide information and support on managing anxiety and depression
- Co-ordinate events aimed at engaging members to provide peer support
- Highlighting the prevalence of all forms of heart disease across the spectrum of age
- Highlight the gaps in care and support for patients with congenital heart disease and
- Lobby in Parliament to ensure awareness of observed gaps or deficits in patient care to
- ensure all patients have access to appropriate therapies
- Drive policy maker and clinician support for screening of heart disease
- Run national awareness/screening events highlighting heart disease affects Australians of all ages, race and genders.
Why We Do
Heart disease has predominantly commonly considered as a disease that affects the elderly. There is often less awareness that young and fit people are also at risk and may be living with undiagnosed life threatening conditions. There is an estimated 460,000 Australians living with Atrial Fibrillation alone, many of which their condition may have been undiagnosed for months or years. An aging population, and with a great prevalence of obesity, diabetes and inactivity, these statistics are set to rise. There are more babies born with congenital heart disease than any other condition and due to new medical technologies, these babies who in the past would not survive, are now growing up. There are upon thousands of young cardiac patients that are struggling living with a chronic heart disease with minimal support and awareness.
- To save lives- often many serious and life threatening events can occur from undiagnosed heart disorders that have little or no symptoms.
- Many conditions such as Atrial Fibrillation (AF) can be detected with a simple manual pulse check, preventing potentially debilitating events such as a stroke with 1 out of 5 strokes are AF related.
- Increase awareness among patients and clinicians many of life-limiting symptoms can be significantly reduced or stopped with appropriate treatment
- It is essential for patients to have access to correct and timely treatment and resources
- Raise public awareness of all forms of heart conditions, what they are, their associated risks, and the importance of effective treatment
- Support awareness to services such as Cardiac Rehabilitation and other support services
- Increase awareness amongst patients and clinicians many of life-limiting symptoms can be significantly reduced or stopped with appropriate treatment
- Heart disease does not discriminate – it strikes the young and old
- Increase awareness on how heart disease affects patients
- A cardiac patient may appear healthy, but are still suffering with symptoms of chronic diseases or the psychosocial consequences. This may include tiredness, rapid heart rate, nausea, headaches, chest pain all of which in a lot of cases could be life threatening at any moment.
- Until now there has been limited support designated solely for those living with a heart condition.
- Social isolation, lack of peer support and being unclear with symptom recognition can contribute to anxiety that can significantly affect daily living.
- Patients do not have any additional financial assistance with necessities such as rent, bills, general expenses in addition to the ongoing medical bills. This forces patients to work, when they are unfit to work.