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What We Do

What We Do

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EDUCATION

  • Facilitate patient meetings alongside cardiac clinicians educating patients and carers on specific cardiac conditions and treatment options
  • Provide patient educational materials and resources
  • Provide medically approved information to patients from medical experts
  • Increase understanding amongst patients, that many of life-limiting symptoms can be significantly reduced or stopped with appropriate treatment
  • Offer resources and education aimed at preventing hospitalisation
  • Provide online forums/virtual community for cardiac patients, families, carers and friends

SUPPORT

  • Provide one on one support
  • Offer a buddy system connecting people with the same or similar conditions
  • Provide assistance to adolescents with their transition into adult hospitals and services
  • Coordinate national support and network groups
  • Remove the sense of isolation and living a healthier, happier life
  • Respond and seek to resolve cardiac related enquiries  (for symptom or medical advice please contact your doctor and in the case of emergency please dial 000)
  • Provide information and support on managing anxiety and depression
  • Co-ordinate events aimed at engaging members to provide peer support

ADVOCACY

  • Raise the profile of Atrial Fibrillation and the importance of screening, early diagnose and patient access to therapies
  • Represent consumers on various cardiac and research committees
  • Represent consumer on high policy health reforms
  • Highlight the prevalence of all forms of heart disease across the spectrum of age
  • Highlight the gaps in care and support for patients with congenital heart disease and arrhythmias
  • Advocate in Parliament to ensure awareness of observed gaps or deficits in patient care to ensure all patients have access to therapies
  • Drive policy maker and clinician support for screening of heart disease
  • Run national awareness/screening events highlighting heart disease affects Australians of all ages, race and genders