What We Do
EDUCATION
- Facilitate patient meetings alongside cardiac clinicians educating patients and carers on specific cardiac conditions and treatment options
- Provide patient educational materials and resources
- Provide medically approved information to patients from medical experts
- Increase understanding amongst patients, that many of life-limiting symptoms can be significantly reduced or stopped with appropriate treatment
- Offer resources and education aimed at preventing hospitalisation
- Provide online forums/virtual community for cardiac patients, families, carers and friends
SUPPORT
- Provide one on one support
- Offer a buddy system connecting people with the same or similar conditions
- Provide assistance to adolescents with their transition into adult hospitals and services
- Coordinate national support and network groups
- Remove the sense of isolation and living a healthier, happier life
- Respond and seek to resolve cardiac related enquiries (for symptom or medical advice please contact your doctor and in the case of emergency please dial 000)
- Provide information and support on managing anxiety and depression
- Co-ordinate events aimed at engaging members to provide peer support
ADVOCACY
- Raise the profile of Atrial Fibrillation and the importance of screening, early diagnose and patient access to therapies
- Represent consumers on various cardiac and research committees
- Represent consumer on high policy health reforms
- Highlight the prevalence of all forms of heart disease across the spectrum of age
- Highlight the gaps in care and support for patients with congenital heart disease and arrhythmias
- Advocate in Parliament to ensure awareness of observed gaps or deficits in patient care to ensure all patients have access to therapies
- Drive policy maker and clinician support for screening of heart disease
- Run national awareness/screening events highlighting heart disease affects Australians of all ages, race and genders